Always Grateful

Grace Johnson

Transplant Recipient, Minnesota

  • Heart, January 24, 2020, University of Minnesota Health Transplant Services

Born via emergency c-section Nov., 16th, 2019 at 35 weeks our Grace was not doing well, difficulty breathing, tube fed, and low platelet levels she had to be transferred to St. Coud hospital where we found out she had entrovirus- meningitis. It started to attack her heart and she started to code. She was then flown to U of M Masonic children’s hospital where she was put on ECMO for a week. She started to look a little better and handled extabation well, and then she declinded again. 5 attempts of intubation, multiple blood transfusions, high drugs/medications to keep her calm it was clear she needed a heart transplant. So we agreed to have her on the Berlin/LVAD, and that only lasted one week before clotting, so a 2nd one was placed and the next day we got the calk a heart was available. She was transplanted Jan. 24th, 2020 and THRIVED! Slowly weaned off alot of major drugs/medications and a gtube was placed and she was discharged March, 2020! Only small complications since then, but as of now (Oct. 2020) she is doing absolutely amazing!

She is the strongest little girl i know! Having a heart transplant at 2 months old and living inside a hospital for 6 months she is amazing

-Amazing Grace

Your bravery inspires us everyday,
Mom, Dad, Gauge and Noah J.